Dialogue with the Interministerial Delegation on Neurodevelopmental Disorders (IN-TND)

Posted on by

1. Our letter

1.1. Quick summary

Our letter proposes a dialogue relating to public policies for autistic people in France. She emphasizes the lack of specific policies for accessibility for autistic people with disabilities. Four requests for information (A, B, C, D) are presented, implicitly suggesting a meeting (E) to discuss the proposal in more detail.

L’Autistan Diplomatic Organization aims to inform public authorities of different countries about the challenges and needs of autistic people exposed to disabling situations (PAESH). Its neutrality and ability to compare policies between countries make it a valuable asset.

The communication between the Embassy of Autistan and the French authorities met with difficulties, notably misunderstandings on the orientation towards Interministerial Delegation for Accessibility. Requests for specific information and comments on the focus on physical and digital accessibility are presented.

The importance of accessibility for people with autism is underlined, highlighting the obstacles attitudinaux, social and administrative. PECCAP is proposed as a basis for creating an accessible environment. The letter calls for a comprehensive accessibility policy to make everyday life equitably accessible, reducing exclusion and mistreatment.

The need for dialogue on various topics related to autism, with an emphasis on accessibility for PAESH, is expressed. The letter offers additional information, highlighting the difficulty of constructive dialogue without understanding the conditions necessary for accessibility. This letter concludes by asking the position of the Delegation on the dialogue proposal, emphasizing the importance of audio-video meetings to avoid misunderstandings, and expresses the hope of receiving constructive comments.

1.2. Summary

This summary provides an idea of ​​the content of our letter to the Interministerial Delegation to the National Strategy for Neurodevelopmental Disorders, who deals with autism in France (good that “autism” or to be imperatively distinguished from “autism disorders”, as we explain ici).

1. Some useful information about our organization and our approach

2. Misunderstandings and difficulties relating to dialogue and accessibility

2.1. Predictability and prevention of obstacles
2.2. Apparent misunderstanding regarding our dialogue proposal
2.3. Possible confusion regarding our mention of the’ “accessibility”
2.4. The Interministerial Delegation for Accessibility

2.4.1. How to access it ?
2.4.2. Little visibility of relevance in the decree
2.4.3. Meaning of lack of competence emanating from the Ministerial Delegation for Accessibility
2.4.4. Lack of mention of accessibility for autistic people in a recent “table ronde” you CNCPH
2.4.5. Perplexity about taking into account the notion of accessibility for Autistic People Exposed to Disabling Situations (PAESH) In France

3. Accessibility for Autistic People Exposed to Disabling Situations (PAESH)

4. Dialogue on all other useful topics regarding autism

Annexe 1 : Quick presentation on Autistan, on the Diplomatic Organization of Autistan, and on the difficulties and needs of autistic people

Annexe 2 : Common barriers to communication and collaboration

Annexe 3 : Some useful elements for understanding the concept of’ “Accessibility for Autistic People Exposed to Disabling Situations (PAESH)”, and its primordial necessity

1.3. Summary by ChatGPT

0. : The letter expresses gratitude for the response of the 25/10/2023 to a first contact.
She addresses a proposal for dialogue on public policies for autistic people in France, highlighting the provision of additional information via their concept.
A crucial example raised is the lack of specific policies and standards for accessibility for autistic people with disabilities.
The letter seeks to clarify the organization’s proposals, and submits four requests for information (A, B, C, D).
What's more, it implicitly suggests a meeting (E) to discuss more effectively.

1. : The Diplomatic Organization of Autistan stands out for its commitment not to interfere in external affairs or to make demands (other than information). Its main objective is to provide information to public authorities in different countries, aimed at improving their understanding of the challenges and real needs of Autistic People Exposed to Disabling Situations (PAESH). The singularity of his approach, the possibility of comparing policies between different countries, and the neutrality of the organization are undeniable assets. Furthermore, thanks to these characteristics, the organization can also help resolve conflicts between government authorities and affected people's organizations. The information provided by the Autistan Diplomatic Organization has already been appreciated in various countries and should also be beneficial in France, as a useful addition to existing resources.

2. : This part expresses communication difficulties between the Embassy of Autistan and the French authorities, highlighting some key points :

    • Recognition of barriers relating to autism, with a suggestion for prevention.
    • Clarification on the intention of the initial dialogue, highlighting a misunderstanding on the orientation towards the Interministerial Delegation for Accessibility.
    • Regret for the not very explicit mention of the’ “accessibility” for autistic people in the previous email.
    • Request for information on how to contact the Interministerial Delegation for Accessibility.
    • Remarks on the recent decree, emphasizing a focus on physical and digital accessibility.
    • Reminder of a previous consultation with another Ministerial Delegation for Accessibility and the responses obtained.
    • Observations on the Lack of Discussion on Accessibility for Autistic People at a Recent Roundtable.
    • Reflections on the recognition or understanding of the notion of accessibility for autistic people by public authorities in France.

3. : This part discusses the importance of accessibility for autistic people, emphasizing that obstacles are not just physical, but also socio-generated, such as communication and sensory problems. She calls for a comprehensive accessibility policy, encompassing social and administrative aspects, with binding standards. The PECCAP (Correct Consideration of Autism Everywhere) is mentioned as a basis for creating an accessible environment. The goal is to make daily life equitably accessible, thus reducing exclusion and mistreatment. The request is to know the position of the Delegation on this subject.

4. : This part expresses the need for dialogue on various topics related to autism, with a particular emphasis on accessibility for Autistic People Exposed to Disabling Situations (PAESH). The author emphasizes that although accessibility is crucial to reducing the discomfort and suffering linked to poor consideration of autism, there are other important topics to discuss.
The author offers additional information and points of view, but highlights the difficulty of engaging in constructive dialogue in the absence of understanding of the conditions necessary for accessibility for autistic people. He mentions that this accessibility is often not considered, which can hinder the implementation of effective measures, even with the good will of the Delegation.
The text concludes by asking for the position of the Delegation on the dialogue proposal, highlighting the importance of audio-video meetings to avoid misunderstandings.

Comments are closed.